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How this child with Spina Bifida is proving all his doctors wrong!

Q: How old is Nehem? A: Nehem is 10 months old Q:Where do you live? A:  We live in Huntsville, AL Q:What type of Spina Bifida does Nehem have? A: Myelomeningocele Q: How can we continue to follow Nehemiah's story? A: IG @hannahmcperry  or follow our blog http://www.shperryfamily.blogspot.com   After 3.5 years of trying, and…

This Spina Bifida Warrior is teaching others to see the beauty in what most people would label as imperfect.

Q: Where do you live? A: Miami, FL Q: How old is Elena? A: She is 14  months old Q: What type of Spina Bifida does Elena have? A: Lipomyleomeningecele Q: How can we continue to follow Elena's story? A: Follow her on IG @efernandes1215   Elena was born at 41 weeks. My pregnancy with…

This Spina Bifida parent quickly learns to be the mother of all advocates.

  Q: Where do you live? A: Central Utah Q: How old is Madilynn? A: 13 days old Q:What type of Spina Bifida does Madilynn have? A : She has Myelomeningocele from L4-S1 and the sac ruptured at birth. Where can we go to continue to follow Madilynn's story? A: Check out my blog thehomemadesister.com or on…

Spina Bifida is not a death sentence. It doesn’t have to define you!

Q:Where do you live? A: New Jersey Q: How old is Riley? A: She's 10 months old Q: What type of Spina Bifida does Riley have? A:She has Myelomeningocele lesion L4-L5 and also Hydrocephalus that was caused by Spina Bifida. Q: How can we continue to follow Riley's story? A: follow me on instagram @c.cameron3…

Teal on the Hill: Spina Bifida advocacy on Capitol Hill.

Advocacy, to change "what is" into "what should be" -unknown Last week my husband and I attended the Teal on the Hill event in Washington, DC.  It was put together by the Spina Bifida Association (SBA) - whose color is teal, get it? There were over 100 people just like me attending this event, from…