Blog

This Spina Bifida parent quickly learns to be the mother of all advocates.

  Q: Where do you live? A: Central Utah Q: How old is Madilynn? A: 13 days old Q:What type of Spina Bifida does Madilynn have? A : She has Myelomeningocele from L4-S1 and the sac ruptured at birth. Where can we go to continue to follow Madilynn's story? A: Check out my blog thehomemadesister.com or on…

Spina Bifida is not a death sentence. It doesn’t have to define you!

Q:Where do you live? A: New Jersey Q: How old is Riley? A: She's 10 months old Q: What type of Spina Bifida does Riley have? A:She has Myelomeningocele lesion L4-L5 and also Hydrocephalus that was caused by Spina Bifida. Q: How can we continue to follow Riley's story? A: follow me on instagram @c.cameron3…

Teal on the Hill: Spina Bifida advocacy on Capitol Hill.

Advocacy, to change "what is" into "what should be" -unknown Last week my husband and I attended the Teal on the Hill event in Washington, DC.  It was put together by the Spina Bifida Association (SBA) - whose color is teal, get it? There were over 100 people just like me attending this event, from…

Spina Bifida is a part of who I am and I’m finally going to tell anyone who will listen!

I married this handsome fella almost two years ago.  I remember when I met him I was shy to tell him about Spina Bifida.  I guess I was afraid that telling him about it would make him like me less.  Which is ridiculous because no one has ever loved me less for it and all…