How this child with Spina Bifida is proving all his doctors wrong!

Q: How old is Nehem?

A: Nehem is 10 months old

Q:Where do you live?

A:  We live in Huntsville, AL

Q:What type of Spina Bifida does Nehem have?

A: Myelomeningocele

Q: How can we continue to follow Nehemiah’s story?

A: IG @hannahmcperry  or follow our blog



After 3.5 years of trying, and accepting that my husband and I wouldn’t conceive on our own, in December 2016 I found out I was pregnant. We were absolutely elated. We found out one Valentine’s Day that we were having a boy and couldn’t have been happier for Nehemiah Thomas to join our family.

Three weeks later at our routine Anatomy scan, everything changed. We were referred to a high risk OB where we were given the news that Nehem had Spina Bifida. Our world came crashing down on us and we were immediately told to abort because he would be incontinent, have severe learning disabilities and mobility issues. We decided abortion wasn’t an option and we would do whatever we needed to ensure that Nehem lived a full, happy life and that we would share his story and allow God to use him however He would like.

We were then referred to Vanderbilt children’s hospital where we were given much more information about what Spina Bifida really looked like. On July 27, 2017 Nehemiah Thomas was born and he has been blowing his parents and his doctors away ever since! He is now 10 months old, meeting all cognitive and physical milestones  (aside from weight bearing.)


The most common thing I see in each of the stories we share is that every single child seems to prove the doctors wrong!  They always live way beyond the expectations given to them and really teach everyone around them some valuable life lessons!

It just always amazes me and never gets old…..GO NEHEM!!!

Published by

Kristin Marquis

Hey there! I'm Kristin. I live in the beautiful Seacoast town of Portsmouth, NH with my hubby Matt and our rescue pup Charlie. I was born with Spina Bifida and made this website in hopes that I would reach other people going through the same difficult things as I have and also to inspire others to embrace their differences and live Spina-Beautifully!