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“I danced from age 3 to 24, the last 10 years of which I was on a competition team and I taught dance to children with physical disabilities.”

Q: What is your name? A: Kaylee Q: What type of SB do you have? A: Myelomeningocele L5- S1 Q: How can we continue to follow your story? A: I write for the Rolling Without Limits blog and have a Facebook page all about my life with an owner trained mobility service dog who is…

8 things you should know if you have Spina Bifida and are planning to get pregnant!

We are about a week away from my induction date and I wanted a place to write down all the things I have experienced through this amazing journey! I remember when my husband and I first started thinking about having children and feeling like there isn't much info out there about women who have Spina…

” Kristin learned to cath herself at a very early age, but this created issues with her “pretending” she was doing it behind the nurses’ closed bathroom door. She just wanted to be normal. “

Oh how time flies! Thirty-five years ago, things were very different and I have seen the effects technology has had on society. As a teacher, I see how much my students have available to them at their fingertips instantaneously. And as a mother, I see how far technology has taken us in the field of…

“I am thrilled that we are making such great progress with adult care for those with Spina Bifida and will look forward to having a voice in creating new resources for future generations.”

    Q: What is your name? A: Sarah Haywood Q: How old are you? A: 30 years old Q:What type of SB do you have? A: L4/L5 Myelomeningocele Q: How can we continue to follow your story? A: on FB Sarah Haywood or Instagram @sarahdhaywood Like many Spina Bifida stories, my diagnosis was a…

“I made it! I didn’t mean to have such negative thoughts but, after losing my first child it was hard to believe that the same thing wouldn’t happen again.”

I made it! I didn't mean to have such negative thoughts but, after losing my first child it was hard to believe that the same thing wouldn't happen again. I was skeptical and had it in my mind that if I reached 22 weeks (which is when I had my still-birth) that just maybe this…