Blog

” Bella is doing so well and is such a strong, beautiful, happy, smiley, little fighter who loves her cuddles and who is so very loved and absolutely doted on by her 2 big brothers. “

Q: What is your SB warrior's name? A: Bella Q:Where do you live? A: Scotland Q: What type of SB does she have? A: Spina Bifida, Hydrocephalus and chiari II malformation Q: How can we continue to follow your story? A: On my YouTube channel: Bellaroo and mummy Firstly I'd like to introduce myself. My…

“In 1986, a single Mom-to-be, 7 months along, hearing the news, “Your baby has fluid on the brain. It could be Spina Bifida with Hydrocephalus” I’m sure fear and disbelief began to set in. Yet, there was the voice of the Lord declaring that everything was going to be alright!”

Q: What is your name?A: Jessica MobleyQ: How old are you?A: 32 years oldQ: What type of SB do you have?A: MyelomeningoceleQ: How can we continue to follow your story?A: On facebook @JessicaBreathofFreshAirIn 1986, a single Mom-to-be, 7 months along, hearing the news, "Your baby has fluid on the brain. It could be Spina Bifida…

“My family always encouraged me to do everything children my age were doing…And I did everything that my prognosis said I would never do.”

Q:What's your name? A: Jessica Hyder Q: What type of SB do you have? A: Myelomeningocele L4-5 Where do you live? A: Michigan Q:How can we continue to follow your story? A: On Facebook @Jessica Hyder I was my parents firstborn child, after a handful of losses. In 1985, my parents were lucky to find out…

“You should never, ever be told you can’t do something just because you have a disability. That disability makes you special and unique!”

Q: What is your name? A: Kelley Q: How old are you? A: 33 years old Where do you live? A: Mississippi Q: What kind of SB do you have? A: Spina Bifida and Hydrocephalus Q: How can we continue to follow your journey? A: on Instagram @kelley_rhoades or check out my blog blogginwithKelley.blogspot.com/ Let…

“But, I just know that everybody is different and other people are going through the same thing.”

Q: What is your name? A: Braxton Q: How old are you? A: 9 years old Q:What type of SB do you have? A: Lipomyelomeningocele- Tethered cord Q: How can we continue to follow your story? A: on Instagram @embracing_his_perfection Hi! I’m Braxton’s mom. I asked him to tell me a little bit about living with…