“God gives his most difficult battles to his best warriors.” This child living with Spina Bifida is proof of that!

The doctors diagnosed Kenji at 18 weeks of gestation. For my husband and I it was very hard because we did not know anything about Spina Bifida. Many bad thoughts came to our heads about what Kenji’s life would be like. The doctors offered to abort but I said I was not going to stop the pregnancy, that I was going to have him as God intended and love him as he was.

I started to research Spina Bifida and I learned that having Spina Bifida does not limit you to anything you want to achieve. That every home where there is a person with Spina Bifida is blessed because God gives his more difficult battles to his best warriors.IMG_7726

Every time I went to a medical appointments in Boston at the Tufts Hospital they found something wrong with my Kenji. Every week they told me more bad news but I decided from the beginning to put it in the best hands, the hands of God. I believed with great faith that he would give me what he thought fit for me and my son. Well, he gave me more than I could have asked for!

When Kenji was born he was beautiful! He was immediately taken to intensive care. He was born at 2 in the afternoon of January 9, 2018, and at 7 o’clock the next morning he was being operated on for 9 hours. My little one fought! Surgery went very well.  We spent 10 days in Tufts. In those days I did not leave his side for a moment. Next, they had to operate on his head because he still had fluid on his brain. He was sent to the Children’s Hospital with Dr. Benjamin Warf. God is so big that when Kenji arrived for that surgery they decided not to operate because the fluid was decreasing. Instead, they kept him for observation for 3 days to repeat the study. When they did the study again it was better than the previous ones.IMG_7722

Today doctors are surprised with Kenji! His diagnosis was that he was not going to move, he would not even be able to recognize me. But, God is the one who has the last word! On July 13th of the same year the doctor told us that Kenji’s brain was developing normally and he was no longer at risk of hydrocephalus. Kenji is surprising because he is developing as if he was not born with Spina Bifida. Kenji is a very active, very intelligent baby at 6 months old. He already sits alone, plays and recognizes everyone and is very awake and happy. I know that God has a very big purpose with him and our lives since we were given this great miracle that is Kenji. I would not change the whole process that I had to go through in my life to have him. He had to get to me in this way. Before Kenji we lost two pregnancies and twins 5 years ago. God has been very merciful with me to give me one of his angels. He gave me more than I could’ve dreamed!

Thank you for allowing me to write you Kenji’s story. I hope it is not too long, although in fact it is 😊 Sorry but I had to tell everything about my miracle. Thanks😘

Original post:

 El es mi hijo Kenji , los médicos lo diagnosticaron a las 18 semanas de gestación , para mi y mi esposo fue algo muy duro porque no sabíamos que era realmente espina bífida nos llegaron muchos pensamientos malos a la cabeza de cómo sería la vida de Kenji , los medico no querían que el naciera pero yo dije que si iba a nacer que no iba a parar el embarazo que lo iba a tener como dios me lo diera y que lo iba amar como sea que el estuviera .Desde que me dieron la noticia de su condición me puse a investigar sobre espina bífida y vi niños bellos extraordinarios y aprendí que tener espina bífida no te limita a nada que quieras lograr , que cada hogar donde hay una persona con espina bífida es bendecido porque Dios le da las batallas más difíciles a sus mejores guerreros . Cada vez que iba a una cita médica en Boston en el hospital de tufts le encontraban algo malo a mi Kenji , todas las semanas me decían que tenía algo malo,Pero yo decidí desde el principio ponerlo en las mejores manos , las de Dios y creer con mucha fe de que el me daría lo que él creyera conveniente para mi y para mi hijo , y el me dio más de lo que le pude aver pedido. Cuando Kenji nació fue hermoso , de inmediato lo llevaron a cuidados intensivos el nació a las 2 de la tarde del 9 de enero del 2018 y ya a las 7 de la mañana del día siguiente lo estaban operando , duro 9 horas la cirugía , le pusieron mucha sangre pero mi chiquito lucho,Y salió muy bien de la cirugía , pasamos en tufts 10 días , en esos días no me fui ni un instante de su lado , luego el doctor nos dijo que tenían que operar su cabecita porque avía subido líquido y nos mandó al children’s hospital con el doctor Benjamin warf , pero Dios es tan grande que cuando el hizo la resonancia a Kenji decidió no operarlo porq el líquido estaba disminuyendo y lo dejo en observación por 3 días para repetir el estudio,Cuando lo hizo este estudio estaba mejor que los anteriores , al día de hoy los médicos están sorprendidos con Kenji porque su diagnóstico era que no iba ni a moverse, nisiquiera iba a poder reconocerme pero Dios es quien tiene la última palabra . El 13 de julio de este mismo año 2018 ya le hicieron la última resonancia de la cabeza a Kenji y el medico nos dijo que su cerebro se está desarrollando normal y q ya no tiene riesgo de hidrocefalia que Kenji es sorprendente porque se está desarrollando como si no hubiera nacido con espina bífida , Kenji es un bebe muy activo muy inteligente tiene 6 meses ,ya se sienta solo ,juega y reconoce a todos es muy despierto y feliz y se que Dios tiene un propósito muy grande con el y nuestras vidas ya que nos dio este gran milagro que es Kenji . Y no cambiaría todo el proceso que he tenido que pasar en mi vida para tenerlo a él ,porque el tenía que llegar a mi de esta manera , antes de el perdí dos embarazos el último era de gemelos hace ya 5 Años ,Dios ha sido muy misericordioso con migo al darme uno de sus ángeles y me dio más de lo que le pedí .

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