“But, I just know that everybody is different and other people are going through the same thing.”


Q: What is your name?

A: Braxton

Q: How old are you?

A: 9 years old

Q:What type of SB do you have?

A: Lipomyelomeningocele- Tethered cord

Q: How can we continue to follow your story?

A: on Instagram @embracing_his_perfection


Hi! I’m Braxton’s mom. I asked him to tell me a little bit about living with Spina Bifida and this is what he said….

I was born with this and usually you need at least one surgery to fix it but I have had a lot of surgeries. I will still need more. Living with Spina Bifida is hard. You might think it’s not so fair that other people don’t have it but, once you meet others with Spina Bifida it’s a whole new world. I have lots of friends that have it. For me, I used to try to act like other people because I’ve had a lot of bullies in my life that make fun of me.  But, I just know that everybody is different and other people are going through the same thing. I have a lot of friends that go through this too and I am not going to let the bullies do this to me. I just stared a new school and it is much better. I wish that people would just know that I may be different but I am really no different then others with Spina Bifida. I would rather they just ask me questions. You’ll meet a lot of mean people in life but just ignore them and keep moving forward. There’s a lot of sports that you can still do and that’s why I want to be in the Olympics one day.


I love how Braxton addresses the issue of bullying.  I know there are a lot of people (children and adults) out there who tend to bully people for looking different.  Why? If you just asked that person more about their differences you would see that we are really all the same.

I hope each and every one of you take this very simple lesson today, taught by the amazing 9 year old Braxton, and remember to be kind to one another.

Published by

Kristin Marquis

Hey there! I'm Kristin. I live in the beautiful Seacoast town of Portsmouth, NH with my hubby Matt and our rescue pup Charlie. I was born with Spina Bifida and made this website in hopes that I would reach other people going through the same difficult things as I have and also to inspire others to embrace their differences and live Spina-Beautifully!